Showing posts with label milestones. Show all posts
Showing posts with label milestones. Show all posts

Wednesday, August 31, 2016

just where we are: family photos by Heal Courageously


the moments turn into minutes
the minutes into hours
hours into days
days, weeks, months, years

it has been years since we have had our family photo professionally taken
and so when Michelle from the incredible organization Heal Courageously offered her free service 
of taking our family photo
i was elated

Heal Courageously is a non-profit organization which provides a free service to those dealing with life threatening illness 
patients, care givers and survivors 
in which photographers volunteer their time to capture life just where they are 
in what Michelle calls “the night side of life” 
this time of life that shapes us the most  
she gives them the opportunity to to reflect back on those things that cannot be taken by illness  
to hear more about Michelle, her story, and why she founded this organization
be sure to check out my LifeBeats Project podcast with her here

i am sure you have all experienced the stress that comes with getting ready for and taking family pictures  
this experience was nothing like that  
it was freeing 
it was freeing to know that some one was coming to our home for the purpose of capturing us just as we are  
no wardrobes were purchased 
no predetermined poses 
just us  
we had not had our family photographed professionally in over five years 
and so much has changed  

Michelle and her photographer Emily came to our home and were there to serve  
their presence was calming and warm  
we captured Mike in his wheelchair 
with his garden
with each of our children  
we captured him and i together 
and us as an entire family in our home 
and on our back porch  
emotions were there on the surface as I watched my little family 
and cherished where we are 
and that we could capture this time in our life together

here are just a few of the many photos captured
that will forever freeze this time in our life
in our home
our beautiful home
16 moves in the making
where we can thrive as a family
and provide the clinical material for each of us to grow into our potential
i can't wait to watch


































Sunday, November 29, 2015

a new home: the start of a new chapter


i have never been more thankful for a hole and a pile of dirt in my life
and with 3 boys there have been plenty to go around 

after one miracle after another and another 
we will be able to build a home 
one designed with mike's current and future needs in mind
two years ago when we applied for Disability I never would have guessed we would be blessed with this miracle 
when we were denied Disability after a year i wondered how we would make it and why this was happening 
i am thrilled to say that the timing of finally being approved for Disability set into motion a series of unforeseen miracles that will now allow us to have a place of our own  

after moving 15 times we will finally be able to put down roots 
in a home where Mike and our children will thrive and feel secure
no more questions from them of when we are moving next

generally the kids are happy to move
with the exception of one teen pictured
the size of our yard is doing much to persuade them that leaving their friends one more time will be worth it

i am thrilled that Mike will have the accommodations he will need to live life with more ease
and have all of the things he needs on one level
especially since the need for a wheelchair has come

for me i will be nine miles from work
a comfort and a convenience and peace of mind
it won't hurt that i will get to select fun things like paint colors and lighting fixtures either

i think back to those moments of wondering why we were being denied the blessings that in my mind seemed to have not come at a better time
how grateful i am that there is one that can see more than i
i think questioning the timing of things will be a lifelong obstacle for me
but more and more i am beginning to trust God and his timing 
oh there's still the woes in the midst of the storm
but evidences of past aid find their way into my mind and heart more often
delivering that desired calmness which smooths over my eruptions of despair or panic more quickly 
sometimes these episodes come when I think of our future and what that means for Mike's health and our family
and although the circumstances of our trials are not being removed 
the Lord shows us time and time again that he is moving mountains for us so that the climb we are making carrying our load feels possible  
and indeed there are times when He walks the trails beside us, carrying it himself

we have been so grateful to so many of you who answered my call from my last post to come and visit Mike or send him a video or note
our home has been filled with visitors 
and our mailbox and inbox have been filled with messages
it has brought Mike so much joy
and tears to my face
our new home will need to echo your warmth so consider this an official invitation to our new home whenever it's finished
we'll sit on the back porch and sip some lemonade

Saturday, June 20, 2015

The LifeBeats Project



friends i am so grateful that you have stuck around for this ride
that of the journey of transition and finding happiness
as we have adjusted to living with Mike's multiple sclerosis 
as well as my pursuit to provide for our family in a way that will allow me to preserve our family lifestyle as much as possible

i am so grateful for all the things that have come into my life that have provided me 
with learning opportunities and communities of support
and have aided in refining my path towards financial self sufficiency through pursuing my passions

the next stepping stone in this journey comes with much anticipation and joy
as it has so much to do with you
on the wise urgings of my husband who has told me to 'just start'
as opposed to my natural tendency to want to know everything from the beginning to the end
i have 'just started'
and am now able to share the beginnings of this incredible project with you

it is with much excitement and a truckload of butterflies swarming my stomach
that i present to you

The LifeBeats Project is a podcast and blog dedicated to Pursuing the Art of Living Extraordinarily

its a celebration of the extraordinary that already lies within you and
a practice devoted to helping you achieve a breakthrough
to illuminate more of it in yourself
and the world around you

i will be interviewing everyday people like you and me
and sharing their inspiring stories of extraordinary living

as well as expert guests who will share with us practical and applicable steps we can take to help us better our lives and enrich those relationships around us

Listen to my 10 minute introductory podcast over at www.thelifebeatsproject.com 
that will share more about how my passion was sparked and ignited
as well as what you can expect from upcoming episodes

be sure to subscribe with your email address to receive notification of when my first podcast will be released
beat alongside of me in all the beginning stages on instagram @lifebeatsproject

and of course I would love to hear from you
my longtime friends
please share with me your thoughts by commenting below or emailing me at briana@thelifebeatsproject.com
and if you would like to share your story with me
or someone else's story who has inspired you
please share it with me at the above email address as well

thank you for your continued support 
the impact your encouragement and confidence in me has provided
has helped carry me through this rollercoaster journey

Sunday, March 08, 2015

our surprising news


to borrow from a classic movie scene
if we woke up with our heads sewn to the carpet
we wouldn't be more surprised than we are right now

another little person will be joining our family
yep, you guessed it
we’re pregnant

if you’re shocked
you can bet you are in good company
it still seems surreal
the chances of this little one joining us are pretty much one in a million

as i have processed this news over the last few weeks
i have passed through every emotion possible
mike has been my calming influence

a few things are for sure
this child was meant to come to our family
it will be loved with all the squeezes and snuggles that a baby can receive
the Lord must think i have a lot more to give

He will mostly definitely provide what we need as he has in every uncertain circumstance of this our Johnson Journey

Wednesday, January 21, 2015

new reader? start here


hello there new friend! 
pleased to meet 'cha
i'm briana and welcome to my blog Sweet Dreams are Made of These.  i see life in a swirl of colors and ideas and do my best to create some sort of order.  to read about what swirling elements make up my family of 6 read here
for some divulged random facts about me click here or here including my mixtape for life
recently my hubby has joined me as a co-blogger and our goal is for this to be a joint space for us
get to know him here

this year
i have helped brand and launch an organization that breaths life into the soul of mothers
and opens their eyes to see that their journey
the one they are living right now
is worthy of inspiring others
so come inspire and be inspired at

through my own journey i have discovered my true passion
people
i love people
people are beautiful
you and you and you
and i want to celebrate you
i am all giddy inside just thinking about my next venture 
which will share that passion with you this year
watch for it
be a part of it

see more of what i've done this year as a party blogger contributor to 

and more of sharing our family's journey with hardships such as Multiple Sclerosis and cancer

here i blog about: 
the dish on mommyhood for four young active children {3 busy boys and 1 'baby girl'}- family fun, specializing in mayhem
my creative outlet - the essential part that creativity plays in finding joy in each day 
see my growing list of diy/tutorials here








thanks for reading Sweet Dreams are Made of These
grab your favorite bunny slippers and stay for awhile...
i would love to hear from you.
your friend in this journey,
briana

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email me at sewhappytogether6 at me dot com


Thursday, March 06, 2014

the book that saved my husband


what would you do if you couldn't think
no really
you couldn't think critically
ok so i hear some of you sleepless moms of littles saying, that's me everyday
trust me, i get it
but what if you had had a photographic memory, could recite passages of scripture and literature poetically, were fluent in cantonese, and knew every line in every single Seinfeld episode and 80s movie 
and now could not force your mind to complete simple tasks, remember what you did this morning, remember who you spoke with about what, or form words properly when you spoke
to have a ghost of a memory that you once knew so many beautifully rich things 
this is just a mild taste of what my brilliant husband deals with on a daily basis

so when i tell you that Mike just finished a novel
it is with absolute elation that i tell you that my husband just completed his first novel

you know of his passion for books
his thirst for reading
his in depth studying
his fascination with word choice
being drawn into other worlds
living life through the eyes and passion of another

this same passion was born into the soul of our son
for years Mike has had a story in his mind to write for Owen
a story that explored ideals that he wanted our son to seek after
ideals he felt were lacking in the world our son was growing up in

Mike wasn't able to dedicate time to write this story before
well, because he had been busy with so many other things

now his daily life is quite different
a type of different that tears at my heart leading me to often times turn my head from Mike's view so as to hide my tears as i witness his daily struggles and see his brilliant mind dormant
i turn away so he does not witness my moments of inner battle that read on my face, 

but as always the Lord has extended mercy through something very simple 
imagination

imagination flows from dreams
from ideas of our own making
without limits or the necessity for critical thinking
for this reason and a miracle that the overall idea for the story was stored in a part of Mike's long term memory that has been unaffected by his Multiple Sclerosis
Mike was able to write his book

now the process of writing for him was quite different than it would be for you and i
every morning he would forget what he had written the day before
he would forget the storyline, the characters, the direction
every day he would have to start anew, rereading what he had written the day before
learning to take exhaustive notes of any upcoming details of the novel, knowing that in a few short minutes or hours he would forget them
day after day this routine repeated
until nearly 100,000 words were written
a novel completed

out of this process came something beautiful
something life-saving
this book saved my husband

as i sure you can imagine 
having so much of what you would consider your identity and role taken from you
having limitations hinder you from fulfilling those duties you delight in performing for those you love
then battling extreme fatigue and intense pain to carry out those things that remain for you to struggle through
experiencing all of this would throw anyone into a period of questioning your worth 
into period of self doubt and dare i use the 'd' word

being able to write gave him a purpose again
a feeling of contributing
even a feeling of meaning
it brought excitement and structure back into his day
even life
something to look forward to
and although it was difficult to have to start over every day, he could look back at what he had written the day before and see that he was accomplishing something
i loved seeing that passion and vibrance for life return
you could see it in his face
you could hear it in the way he spoke
you could feel it in the energy of our home

he was writing something of value for our son
which became something of value for himself
and something he hopes will be of value to many youth and parents out there 
for he is planning on self-publishing it before Owen's twelfth birthday in May

i want to have Mike tell you more about this experience himself
i know how much you love hearing from him

he has just begun sharing his first draft with family and friends
and is looking for a few others who would be interested in reading it to give him feedback before he sends it to a copy editor
if any of you are interested in reading a copy of his first novel, please contact me
it is entitled, CHOSEN, the quest for the eight keys
and is a young adult novel full of adventure and hilarity as only Mike could write
it is brilliant and we have already received incredible praise from those who have already finished it
including one speed reading son who absolutely loved it and can't wait for the next one in the series
i am beyond proud of what Mike has accomplished and am so happy to see him move forward with self-publishing
i am so grateful for this gift that God has granted him
this opportunity to free his mind and spirit
in a way that will be immortalized for his children and generations to come

Sunday, January 26, 2014

putting my inner voices in time out




there is always some fight within yourself when you are nearing a major breakthrough in your life
your current self just doesn't want to let go of the good thing you’ve got going on right now
good defined as 
comfortable
familiar 
expected
not necessarily good defined as
good for you
change is hard
especially when you keep having that loud and intense inner battle of two voices within yourself 
that you wish you could just rip out of your mind 
tell them to play nice and work it out 
or they are just going to have to just stay there in timeout until they can get along

one voice tells you 
that you are ready to take that next step
you are strong 
you are capable
you’ve got what it takes 
you can rise above
the other voice laughs at you and says
who are you fooling
you can’t change 
look at what you’ve done in the past 
what makes you think that today will be any different
my head is spinning right now just thinking about it
because that has been the battle going inside my mind for months
and i am here today to tell you that as loud as that debbie downer voice has been screaming in my mind 
she has now faded to a whisper
that duct tape must have done the job
no in all fairness i cannot pin point one major event that has triggered this most incredible quieting of the mind and propelled me on to my next level of growth
it has been the compilation of many, many little efforts and the surrendering of myself to faith 
faith in me 
faith in my God
and faith in the circumstances I have been currently blessed with
it has been a loooong fight 
and i have no doubt that that duct taped voice in my head may find her way to a bullhorn once again but next time she’s going to find a new me
one that will have grown in my inner debbie downer silencing skills
change is in the air once again
so watch for some tremendous growth coming on all fronts over here as i climb to that next level of achievement

Saturday, November 30, 2013

a tale of two boys: the arrival of abigail's twin brothers

tonight has been an evening of great reflection
tonight Jani and Jesse
champion parents to our sweet miracle baby Abigail
were once again brought to that moment of greatest anticipation
the birth of their child
and this time the anticipation was doubled
with the birth of twins
twin boys

i know they have been beyond elated to have two new additions to their family
but i can only imagine what entering that hospital felt like to them
did that overwhelming feeling of anticipation become dimmed by a rush of fear
i dare say that it may have
i know i would have let it creep in uninvited

for those of you who have joined our little community within the past two years
you may not be familiar with the story of little Abigail and the fight for her life
born with part of her heart missing
her heart backwards
and on the wrong side
to be then reconstructed several times within such a short period of time
the waiting
the wondering
the holding of ones breath for great lengths of time
i know so many of you journeyed with me
and like me lived from moment to moment on updates regarding her surgeries, setbacks, and recoveries

hers is a story of courage and miracles
fought not only within her own little soul but within that of her valiant father and mother
for many long months

to watch a video i made of the beginnings of her life including that heart wrenching life flight
come visit here
to read more of her journey over those months click here or on the 'abigail' link in the sidebar

this is a family of warriors
tonight two strong boys joined Abigail as children to my fine brother and his superhuman wife
enduring nearly two days of intense labor
jani fought hard to deliver both of her boys naturally
extreme back labor caused an epidural to be necessary at the end of day one
the position of both of the boys allowed for the need for a c-section to be kept at bay
long did she labor
finally help was given for her labor to progress
but it did not
at least not at all in a manner i would deem real progress
slowly it continued
despite the strong contractions

at last this afternoon baby boy one arrived into this world
nicknamed Flex by his grandpa
with his brother baby boy two, nicknamed Blaze, still rather high up
Flex and Blaze
that's how we have known them
little Flex weighed a healthy 5 lbs 1 oz
and looks so much like my brother Jesse i just love it
he arrived doing well
no surprises
he would soon be named
Thomas Russell Dix
a fine name don't you think


i have never experienced a double birth
but i can imagine the sort of mix of emotions
having delivered pure joy after such tribulation
only to have to continue to push and toil once again
for jani this pushing and laboring lasted hours more
to the point where jani just didn't know if she could last much longer
as i am sure you may surmise this woman is one of absolute stamina, faith, and courage
unfortunately Blaze was larger than Thomas and got stuck in the efforts to be delivered
so a c-section was needed
much to jani's dismay
but i know her heart was only directed toward doing what was best for her babies

a time of communication darkness ensued between those there at the hospital and myself
it is ever so difficult to be so far away from my family during moments such as these
during Abigail's birth, surgeries, and fights for her life
i was in california while they were in utah
this time i am the one in utah and they are in california

the next text message i received told me that Blaze was born but was whisked away due to breathing difficulties
my brother was beside himself
i have no doubt that the memories of Abigail's birth flooded his mind
emotions mixed with experiences mixed with logic mixed with faith
all whirling around inside
i could visualize his facial expressions and his stance in my mind
i will say of my brother that he feels the pain of others like no one i have ever known
he feels what they feel
he takes them upon himself

once again a stretch of a communication void
but then there appeared across my phone screen the most beautiful words and photos
the babies were both breathing on their own
both on their own
and daddy and grandma were holding them
jani was in the recovery room resting peacefully

here is jesse with Thomas Russell
and our first glimpse at Blaze...to be named soon




i think i breathed for the first time

and now i am happy to present the first moments Jani was able to see and hold her babies
Jani is the champion of the world
Movember Jesse looks much more worry free
i am so grateful for the miracles that continue to happen in this family
we are continually blessed with watchful heavenly care
and i have no doubt that daddy is able to be close by for occasions such as these
how i wish these little ones could pass on messages from him

photos below:
Jani and Jes with Thomas Russell {baby one}
with Baby Blaze {baby two}
Baby Blaze
Baby Blaze
Thomas Russell whom I can see a lot of Jani in him now
Thomas Russell








i can not wait to see the whole family together
thank you family and friends once again for lifting us up in your prayers
it is an incredible feeling to be surrounded by an army of prayers from those who care for and love you
it is nearly tangible
as it has been many times before
thank you
thank you

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